Stephanie Rose CHS Foundation leaders Alyssa Farella and Brittany Garcia hold a picture of their niece and sister Stephanie Rose Whipple, who died from CHS-related conditions last year.
Nonprofit Raising Awareness of Rare Cannibis-Related Condition
Cannabinoid hyperemesis syndrome is an often misdiagnosed condition in someone who may use cannabis consistently over a long period of time. According to the Cleveland Clinic, up to 33 percent of frequent cannabis users seeking emergency room care displayed its symptoms of nausea, intense abdominal pain and vomiting. This can cause dehydration, loss of appetite, electrolyte imbalance and kidney failure.
Cannabis is often used to reduce pain and nausea and promote the appetite, especially with those undergoing chemotherapy. CHS does the opposite.
The syndrome was first reported in 2004 but has more frequently been diagnosed with the legalization of marijuana. The first deaths from conditions related to CHS were reported in 2016.
The Stephanie Rose CHS Foundation was started in June in memory of Pittsfield native Stephanie Rose Whipple, who was diagnosed with CHS and passed away from cardiac arrythmia last year at age 28.
"Most people with this condition, they don't even realize that they have it. There's not a lot of information or an awareness. So our loved one, Stephanie, she suffered with this for years, and she was diagnosed once by a doctor," said the foundation's treasurer and Whipple's aunt, Brittany Garcia.
Garcia and Alyssa Farella, Whipple's older sister and foundation president, said the family had not known about the syndrome, explaining there's not a lot of information about CHS.
"I just want people to know the risk factors, and I want Stephanie's death to have meaning where she loved helping people," Farella said. "She worked with the elderly, she did activities in a nursing home with elderly, and everything, she was very dedicated to helping people. So I feel like this continues her legacy of doing that to help."
The two want it to be known that they are not telling people to stop using cannabis, which doctors say is the only option now, but to simply inform them of the risks and to be a support for those who may have been touched by the syndrome.
"We're not trying to knock it. We're just showing that someone that we cared about passed away very young because of this. And if we can help anyone else and be there to support ... that's our mission," Garcia said.
The nonprofit is raising funds to invest into CHS education and research and to, hopefully, find a cure.
"Our donations are going towards research. I've looked into the Mayo Clinic. They do a lot of test studies on people that are experiencing CHS, and they have age ranges from like 18 all the way to people in their 70s, elderly people dealing with the effects. So a portion of the donations are going to research to find out find a cure for this," Farella said.
The foundation is holding its first event on Oct. 19 at Greenridge Park in Dalton from 1 to 4 p.m. People will be able to carve pumpkins, enjoy raffles, and more to celebrate Whipple.
"October is a very special month. Stephanie would turn 30 on Oct. 1. She loved all fall things. So this is a good time of year to really honor her," Garcia said. "She loved pumpkins, she went pumpkin picking with us and our little ones and she just loved all fall things. So we really want to do something that represents her birthday."
The foundation hopes to share Whipple's story with the local community and around the world.
"I want to reach other people. I want people that live in another state, that have lost someone. I want them to see this article and to see this and go, 'Oh my gosh, like I know someone that struggles with that,' read Stephanie's story, be inspired and to pass it along to another grieving mother or sister or aunt. I want to reach out not just our small circle, but I want other people to see this and go, 'Oh my gosh, this is real,'" Garcia said.
The family also wants to make sure Whipple is never forgotten.
"We want to put our grieving into something good, something that'll keep her name alive, because that's something we've always worried about, too, is she'll be forgotten," Farella said. "This is a way that she won't be and it's a way that we can take her sickness that she had and help others do good out of it."
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BRTA Focuses on a New Run Schedule
By Breanna SteeleiBerkshires Staff
PITTSFIELD, Mass. — The Berkshire Regional Transit Authority is still working on maintaining its run schedules after dropping the route realignment proposal.
Last Thursday's meeting was Administrator Kathleen Lambert's first official meeting taking over the reins; retiring director Robert Malnati stayed during a transition period that ended last month.
Lambert is trying to create a schedule that will lessen cancellations. There was a two-hour meeting the week before with the drivers union to negotiate run bids and Lambert is working with the new operating company Keolis, which is taking over from Transdev.
The board spoke about anonymous emails from drivers, which Lambert said she has not seen. iBerkshires was not able to see those letters, but has received some.
"They were lengthy emails from someone describing themselves as concerning BRTA employee, and there was a signed letter from a whole group of employees basically stating their concerns. So, you know, to me, it was a set of whistleblowers, and that, what my understanding is that this really triggers a need for some type of process to review the merits of these whistleblowers, not going to call them accusations, but basically expressions of concern," said member Stephen Bannon.
A letter iBerkshires received spoke of unhappy drivers who were considering quitting because of decisions being made without "input from frontline staff," frustration and falling morale, and the removal of the former general manager shortly after Lambert came in.
Lambert said it's difficult to navigate a new change. She also noted many drivers don't want to do Saturday runs and it has been hard negotiating with drivers on the new runs.
"I would like you all to keep in mind that the process of change is super difficult. Transdev has been here for 20 years, and some of these drivers have never known any other operating company, the way some of the operations have been handled has been archaic," she said. "So getting folks up to speed on how a modern transit system works is going to be painful for them. So I don't want to say that I'm unsympathetic, because I am sympathetic, but I am trying to coax people along with a system that's going to seem very strange to them."
The board spoke about better communication between them and Lambert, citing cooperation will be best moving forward.
"There's just a lot of stuff in the air right now, and there are a lot of fires to put out to make this a coordinated effort. And if we don't keep our communications open and be straightforward, then you get blindsided about how you know the input that you could get from us about your position, and how you know what's going on in your direction, and we get blindsided. And I think that we have to make sure that this is a collaboration," said member Sherry Youngkin.
"Both sides have responsibilities, because in the long run, this advisory board is going to have to make decisions as to how we brought forward and if we've gone forward in a fair and helpful way. And I think that's hopefully what everybody is looking for also."
Transdev and Keolis held a three-day recruiting event interviewing almost 40 candidates and offering jobs to eight, but only three stayed on to start training. Lambert said it was disappointing but she will keep trying to retain more people.
In her first report to the board, she noted that ridership dipped a little over 10 percent, but still remains higher than last year, adding that was because of cancellations of services because of the lack of drivers.
Like the last meeting, some of the advisory board members were torn over the start of the Link413 service, worried that the start of the service took drivers away and the numbers of riders are low.
Lambert, however, said the ridership has doubled from last month.
"As I've spoken before, we have, generally, a six-month adoption for brand-new service before you can really go in and evaluate, are you being successful based on the grant that my predecessor wrote along with the team for PBTA and RTA, we are ahead of schedule, which is pretty good, so I'm hoping that will continue to improve," she said.
Member Renee Wood said the board never approved the service, adding the only thing she could find in the minutes was a vote to accept the equipment. She said it was supposed to be put on the agenda to discuss.
"The Link413 service has been three years in the making. It's been a grant that was accepted and has been working with our partners, PVTA and FRTA, to put into place. So I don't have the entire history of how that process worked, but it's been three years in the making, and did we not understand that once we accept that grant that we were going to put in new service?" Lambert said.
The board discussed if Title VI, the Civil Rights Act, was followed with an accurate review and accurate amount of time for public comment period on the service changes and if its attorney should review if the grant conditions were properly followed.
Lambert said changes had the 60-day comment period included in the proposed route realignment packet, giving the opportunity for the community to respond to that as well but will look into the legality of the situation with their attorney.
The Berkshire Regional Transit Authority is still working on maintaining its run schedules after dropping the route realignment proposal. click for more
The town election is less than a month away and, unlike recent ones, all open seats are uncontested, with even a vacancy remaining on the Planning Board.
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