Governor Signs Order to Support Adults with Profound Autism

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BOSTON — Ahead of Autism Awareness Month, Governor Maura Healey signed an Executive Order to establish a statewide strategy to better support adults with profound autism, or adults who are over 22 years old with diagnosed autism spectrum disorder and require 24-hour support and assistance due to a significant intellectual disabilities and limited or no language skills. 
 
The Executive Order aims to improve coordination across state agencies, promote innovation and advance outcomes for adults with profound autism and their families.
 
Adults with profound autism and intellectual developmental disabilities represent a highly vulnerable and growing population in Massachusetts.  
 
"Massachusetts is committed to care and support for all. This executive order will strengthen coordination across agencies and help ensure that adults with profound autism and their families receive the support they need," said Governor Healey. "I look forward to appointing individuals representing families, providers, clinicians and advocates who bring deep expertise and lived experience to this work."  
 
The Executive Order establishes an advisory council led by the Executive Office of Health and Human Services, with designees from the Executive Office of Housing and Livable Communities, Executive Office of Administration and Finance, Department of Developmental Services, Department of Mental Health, Medicaid Director, and the Chairs of the Joint Committee on Children, Families, and Persons with Disabilities. Governor Healey will also appoint up to 10 additional members representing families, clinicians, providers and advocates with expertise in supporting adults with profound autism.  
 
The advisory council will develop recommendations focused on:  
  • Reporting on the prevalence of adults with profound autism in Massachusetts;  
  • Strengthening coordination across state systems serving adults with profound autism, including reviewing eligibility requirements across service systems; 
  • Promoting person-centered, strengths-based approaches that recognize the needs of adults with profound autism; 
  • Identifying opportunities to improve access to stable housing, health care, community-based services, and meaningful daily activities; 
  • Encouraging innovative residential living and service models that support safety, stability, and quality of life; 
  • Improving the use of data to better understand population needs, service utilization, outcomes, and efficient use of state resources over time; 
  • Supporting a sustainable and well-trained workforce responsive to level of care and support needs; and 
  • Informing future policy and budget planning in a manner consistent with the state’s long-term fiscal responsibility. 
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Community Meeting Addresses Prejudice in Pittsfield Schools

By Brittany PolitoiBerkshires Staff

Johanna Lenski, a special education surrogate parent and advocate, says there's a 'deeply troubling' professional culture at Herberg that lets discriminatory actions and language slip by.

PITTSFIELD, Mass. — Around 60 community members gathered at Conte Community School on Monday night to discuss issues with prejudice in the district. 

The event was hosted by the Pittsfield Public Schools in partnership with the Berkshire NAACP and the Westside Legends. It began with breaking bread in the school's cafeteria, and caregivers then expressed fears about children's safety due to bullying, a lack of support for children who need it the most, and teachers using discriminatory and racist language. 

"One thing I've learned is that as we try to improve, things look really bad because we're being open about ways that we're trying to improve, and I think it's really important that we acknowledge that," interim Superintendent Latifah Phillips said, reflecting on her work in several other districts before coming to PPS last summer.  

"It is very easy to stay at the surface and try to look really good, and it may look like others are better than us, when they're really just doing a better job of just kind of maintaining the status quo and sweeping things under the carpet."

Brett Random, the executive director of Berkshire County Head Start, wrote on her personal Facebook page that her daughter reported her math teacher, "used extremely offensive language including both a racial slur (n-word) and a homophobic slur (f-word) and then reportedly tried to push other students to repeat those words later in the day when students were questioning her on her behavior."

The school department confirmed that an eighth-grade teacher at the middle school was placed on leave.  

The Berkshire Eagle, which first reported on the incident, identified the teacher as Rebecca Nitsche, and the teacher told the paper over the phone, "All I can tell you is it's not how it appears." Nitsche told the paper she repeated the words a student used while reporting the incident to another teacher because officials needed to know it happened. 

Johanna Lenski, speaking as a special education surrogate parent and parent advocate, on Monday said there is a "deeply troubling" professional culture at Herberg that has allowed discriminatory, racist, non-inclusive, and ableist treatment of students.

She said a Black transgender student was called a "piss poor, punk, puke of a kid," and repeatedly and intentionally misgendered by one of the school's teachers, and then wrongfully accused of physically assaulting that teacher, which resulted in a 10-day suspension. 

Another Herberg student with disabilities said the same staff member disclosed to an entire classroom that they lived in a group home and were in state Department of Children and Families' custody. When the teacher was asked to come to an individualized education program meeting for that student, Lenski said he "spent approximately 20 minutes attacking this child's character and portraying her as a problem, rather than a student in need of services and protection and support."

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